<![CDATA[reALLERGIES Podcast]]>reALLERGIES Podcast is a compassionate, insight-driven series dedicated to exploring the real stories, clinical science, and advocacy shaping the world of food allergies—especially Food Protein-Induced Enterocolitis Syndrome (FPIES).

Through meaningful conversations with clinicians, researchers, parents, advocates, and patients, the podcast brings clarity to conditions that are often misunderstood, misdiagnosed, and emotionally overwhelming for families navigating them in real time.

Each episode thoughtfully blends clinical expertise with lived experience, offering listeners a deeper unders

]]>https://www.fpies.orgRiverside.fm (https://riverside.com)Wed, 08 Apr 2026 13:02:17 GMTMon, 16 Feb 2026 00:47:34 GMT60I-FPIES<p>reALLERGIES Podcast is a compassionate, insight-driven series dedicated to exploring the real stories, clinical science, and advocacy shaping the world of food allergies—especially Food Protein-Induced Enterocolitis Syndrome (FPIES).</p><p></p><p>Through meaningful conversations with clinicians, researchers, parents, advocates, and patients, the podcast brings clarity to conditions that are often misunderstood, misdiagnosed, and emotionally overwhelming for families navigating them in real time.</p><p></p><p>Each episode thoughtfully blends clinical expertise with lived experience, offering listeners a deeper unders</p>episodicI-FPIEStim@weddingphotonj.comno<![CDATA[reALLERGIES Podcast Episode 2: What Patients Really Need in FPIES Care | Part 1]]>Welcome to Episode 2 of the reALLERGIES Podcast — a continued exploration of FPIES (Food Protein-Induced Enterocolitis Syndrome) through the perspectives of patients, families, and clinicians.

In Part 1, this conversation shifts focus to a critical question: What do patients and families actually need—and are those needs being met?

While clinical conversations often center around diagnosis and testing, this episode uncovers a different reality. Families are searching for guidance on managing reactions, understanding long-term outcomes, and navigating the emotional weight that comes with living with FPIES.

Through real data, lived experiences, and clinical insight, this episode highlights the disconnect between what is discussed in medical settings and what patients are actively seeking—bringing attention to the psychosocial impact, anxiety, and uncertainty that shape everyday life.

Because improving care starts with listening.

Part 2 continues with deeper insights into research priorities, unmet needs, and the future of FPIES care.

If you or someone you love is navigating FPIES, you are not alone.

👍 Subscribe for Part 2
💬 Share your experience (patient, parent, clinician) in the comments

]]>631fa940-f6d4-4d2c-bdc4-b146b34c5d6dSat, 04 Apr 2026 13:00:00 GMT<p>Welcome to Episode 2 of the reALLERGIES Podcast — a continued exploration of FPIES (Food Protein-Induced Enterocolitis Syndrome) through the perspectives of patients, families, and clinicians.</p><p></p><p>In Part 1, this conversation shifts focus to a critical question: <i>What do patients and families actually need—and are those needs being met?</i></p><p></p><p>While clinical conversations often center around diagnosis and testing, this episode uncovers a different reality. Families are searching for guidance on managing reactions, understanding long-term outcomes, and navigating the emotional weight that comes with living with FPIES.</p><p></p><p>Through real data, lived experiences, and clinical insight, this episode highlights the disconnect between what is discussed in medical settings and what patients are actively seeking—bringing attention to the psychosocial impact, anxiety, and uncertainty that shape everyday life.</p><p>Because improving care starts with listening.</p><p></p><p>Part 2 continues with deeper insights into research priorities, unmet needs, and the future of FPIES care.</p><p>If you or someone you love is navigating FPIES, you are not alone.</p><p></p><p>👍 Subscribe for Part 2<br />💬 Share your experience (patient, parent, clinician) in the comments</p>no00:53:2313reALLERGIES Podcast Episode 2: What Patients Really Need in FPIES Care | Part 1full<![CDATA[reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2]]>Welcome back to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 2, Fallon Schultz (Founder & CEO of the International FPIES Association) is joined again by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, as they dive into the realities families face after diagnosis: fear around food, the trauma of reactions, and the exhausting “waiting game” of oral food challenges.

Dr. Nowak-Wegrzyn explains why one of the biggest unmet needs in FPIES is a reliable diagnostic test — because right now, the “gold standard” is still the oral food challenge, an all-day, high-stress process where families often go in with little certainty. Fallon and Landon share what this looks like in real life: the travel, the scheduling headaches, the anxiety, the toll on school and sports, the difficulty of IV access, and the emotional weight of not knowing what will happen next.

But Part 2 also focuses on what’s possible. You’ll hear why most patients eventually outgrow triggers, what it feels like to finally “pass” a food after years of avoidance, and how families can build a healthier relationship with food even inside strict limitations. Fallon emphasizes the importance of clinical support that validates lived experience — and how the International FPIES Association helps bridge families to care, resources, and clinicians who truly understand this condition.

This episode closes with takeaway messages for parents, patients, and clinicians: keep an open mind, listen closely, start small, communicate with compassion, and remember this is a syndrome you can learn to live with — and you don’t have to do it alone.

📍 Next up: behind-the-scenes from AAAAI with the latest FPIES updates and advocacy work in action.
📩 Topic requests: contact@fpies.org

]]>2f3d8daf-adf6-43cd-9252-f938f42b5b23Fri, 13 Mar 2026 13:00:00 GMT<p>Welcome back to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 2, Fallon Schultz (Founder &amp; CEO of the International FPIES Association) is joined again by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, as they dive into the realities families face after diagnosis: fear around food, the trauma of reactions, and the exhausting “waiting game” of oral food challenges.<br /><br />Dr. Nowak-Wegrzyn explains why one of the biggest unmet needs in FPIES is a reliable diagnostic test — because right now, the “gold standard” is still the oral food challenge, an all-day, high-stress process where families often go in with little certainty. Fallon and Landon share what this looks like in real life: the travel, the scheduling headaches, the anxiety, the toll on school and sports, the difficulty of IV access, and the emotional weight of not knowing what will happen next.<br /><br />But Part 2 also focuses on what’s possible. You’ll hear why most patients eventually outgrow triggers, what it feels like to finally “pass” a food after years of avoidance, and how families can build a healthier relationship with food even inside strict limitations. Fallon emphasizes the importance of clinical support that validates lived experience — and how the International FPIES Association helps bridge families to care, resources, and clinicians who truly understand this condition.<br /><br />This episode closes with takeaway messages for parents, patients, and clinicians: keep an open mind, listen closely, start small, communicate with compassion, and remember this is a syndrome you can learn to live with — and you don’t have to do it alone.<br /><br />📍 Next up: behind-the-scenes from AAAAI with the latest FPIES updates and advocacy work in action.<br />📩 Topic requests: <a rel="noopener noreferrer nofollow" href="mailto:contact@fpies.org" target="_blank">contact@fpies.org</a></p>no00:25:521reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2full<![CDATA[reALLERGIES Podcast Premiere: FPIES Through Three Lenses (Parent, Patient, Clinician) | Part 1]]>Welcome to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 1, Fallon Schultz (Founder & CEO of the International FPIES Association) is joined by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, for an honest conversation about what this condition really looks like beyond the textbook.

Together, they unpack why FPIES is often misdiagnosed or dismissed, how it was first recognized in the medical literature, and why families have historically felt like they were navigating the “dark ages” — with little awareness, few resources, and no clear roadmap. Fallon shares the moment that changed everything: being told “we don’t know what foods to feed him,” “we don’t have a treatment,” and “there isn’t an organization” — and the pledge that led to the creation of the International FPIES Association.

You’ll also hear Landon describe what a reaction feels like in real life — the delay, the warning signs, the sudden escalation — and why validation and clinician support matter so deeply. Dr. Nowak-Wegrzyn explains why this is a “curveball” form of food allergy, why we still lack reliable diagnostic tests, and how patient voices have helped move the field forward (including milestones like the ICD-10 code and consensus guidelines).

Part 2 continues the conversation with unmet needs, research gaps, and where solutions must go next.

If you or someone you love is navigating FPIES, you are not alone.

👍 Subscribe for Part 2
💬 Share your experience (patient, parent, clinician) in the comments

]]>d59367b0-8926-4ea7-bc1a-fc98bdf66813Wed, 25 Feb 2026 15:55:18 GMT<p>Welcome to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 1, Fallon Schultz (Founder &amp; CEO of the International FPIES Association) is joined by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, for an honest conversation about what this condition really looks like beyond the textbook.<br /><br />Together, they unpack why FPIES is often misdiagnosed or dismissed, how it was first recognized in the medical literature, and why families have historically felt like they were navigating the “dark ages” — with little awareness, few resources, and no clear roadmap. Fallon shares the moment that changed everything: being told “we don’t know what foods to feed him,” “we don’t have a treatment,” and “there isn’t an organization” — and the pledge that led to the creation of the International FPIES Association.<br /><br />You’ll also hear Landon describe what a reaction feels like in real life — the delay, the warning signs, the sudden escalation — and why validation and clinician support matter so deeply. Dr. Nowak-Wegrzyn explains why this is a “curveball” form of food allergy, why we still lack reliable diagnostic tests, and how patient voices have helped move the field forward (including milestones like the ICD-10 code and consensus guidelines).<br /><br />Part 2 continues the conversation with unmet needs, research gaps, and where solutions must go next.<br /><br />If you or someone you love is navigating FPIES, you are not alone.<br /><br />👍 Subscribe for Part 2<br />💬 Share your experience (patient, parent, clinician) in the comments</p>no00:35:311reALLERGIES Podcast Premiere: FPIES Through Three Lenses (Parent, Patient, Clinician) | Part 1full